Created Date: June 05, 2015
Author: pietrosfight
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Comment(s): 0
BUMP, CRASH, and SMASH DMD!
At Adventurers (Nelly Bly) – June 6th 2014
Pietrosfight.org hosted our third annual children’s event, “Bump, Crash and Smash DMD”, on Friday June 5th 2015 at Adventurer’s Family Entertainment Center. The overwhelming turnout was a huge success with over 400 kids and parents coming out to support Pietrosfight.org. Parents took their families for a fun filled day for a great cause. Teaching our kids to support one another and our community.
It is important to show our children what it means to give back and from a young age that we are all built differently. Because of all of our fighters and supporters who have been there with us from day one, this disease is on its way from being a fatal disease with no hope to a chronic disease that can be slowed down while a cure is found. Senator Marty Golden joined us that evening and spoke about the progress of the drug Sarepta that this community has helped fund. Pietrosfight.org has been waiting for answers from the FDA for almost three years now on approval for a drug called Eteplirsen that would help boys with DMD. The FDA has finally heard our voices and FDA announced they no longer need to see more data and that Sarepta should apply for a New Drug Application. Which means this drug will be scheduled for approval. They have also opened a new trial for younger boys 4-6 which Pietro is eligible for and has started pre-screening for and will hopefully get in. We would like to thank Senator Marty Golden for their endless support.
Thank you to all the Sponsors, Bay Ridge Honda and The Sabbagh Family, Lewis Salgado Consultants LLC, Pearly Whites, Dana Ford, Dr. Teddy Neamonitis of Millennium Phyiscal Therapy, Dan, Holly and Bru, Travel Management, RSSM CPA LLP, Stepping Stones, The Temperino Family, The Alacan Family, The Altilio Family, Harbor Fitness, GPM Pediatrics, PC , D’Onofrio General Contractors Corp, Elisa DiGregorio, The Nickley Family, The Agostino De Laurentis Family, Mike Donut Shop , Morky and Mindy, Bay Ridge Honda and The Sabbagh Family, The Elfont Family, Complete Cadiovascular Care Spyros Kokolis MD, The Fortunato and Filipazzo Family, Bohemian Hair Salon, Romantique Double Diamond, Cebu Bar and Restaurant, Pittsburgh Jet, CKO Bayridge and Sheepshead bay , Dr. Michael G Vitale MD, MPH, Spadaro International Services, The Nicastro Family, The Tadduni Family, The Aiello Family, acpjets.com, Menny Memories Entertainment, D.Coluccio & Sons Inc., Finishing Touch Landscape & Design, ino Iron Works, Sarta Realty LLc, Law offices of Sarta & Scarpati, LLP, Bad Ass Academy, SocialMink.com and Priority Payments Local
Thank you for the desserts that were donated by Little Cup Cake Bakeshop and Maria’s Gourmet Italian Ices!
Thank you for the food donated by Paneantico of Bay Ridge Brooklyn, Royal Crown of Staten Island, Peter Pizza, Krispy Pizza, and Peppino’s Brick Oven Pizza!
Thank you to Michelle of Bobby’s World PC for providing the entertainment that all kids were able to partake and that kept the kids crafting and snacking on Popcorn and Cotton Candy.
Thank you to Augie of Metro City Entertainment for provided the music that kept every kid moving and grooving.
Thank you to EMPIE ALL STARS CHEERLEADERS for starting us off with Cheer and keeping our guests entertained.
Thank You to Daniel Marino from Marino Photography for snapping all the pictures and Stas Furman from FACTOR 5 FILMS for videoing the events of the day.
Thank you to the Class act, park owner Toby for hosting the event for us and acknowledged the enjoyment of the afternoon and compassionately kept the event going for an extra hour AGAIN for the third year in a row, free of charge. The staff was so supportive and excited to be a part of Pietrosfight.org. THANK YOU VERY MUCH!
Pietrosfight.org hosted our third annual children’s event, “Bump, Crash and Smash DMD”, on Friday June 5th 2015 at Adventurer’s Family Entertainment Center. The overwhelming turnout was a huge success with over 400 kids and parents coming out to support Pietrosfight.org. Parents took their families for a fun filled day for a great cause. Teaching our kids to support one another and our community.
It is important to show our children what it means to give back and from a young age that we are all built differently. Because of all of our fighters and supporters who have been there with us from day one, this disease is on its way from being a fatal disease with no hope to a chronic disease that can be slowed down while a cure is found. Senator Marty Golden joined us that evening and spoke about the progress of the drug Sarepta that this community has helped fund. Pietrosfight.org has been waiting for answers from the FDA for almost three years now on approval for a drug called Eteplirsen that would help boys with DMD. The FDA has finally heard our voices and FDA announced they no longer need to see more data and that Sarepta should apply for a New Drug Application. Which means this drug will be scheduled for approval. They have also opened a new trial for younger boys 4-6 which Pietro is eligible for and has started pre-screening for and will hopefully get in. We would like to thank Senator Marty Golden for their endless support.
Thank you to all the Sponsors, Bay Ridge Honda and The Sabbagh Family, Lewis Salgado Consultants LLC, Pearly Whites, Dana Ford, Dr. Teddy Neamonitis of Millennium Phyiscal Therapy, Dan, Holly and Bru, Travel Management, RSSM CPA LLP, Stepping Stones, The Temperino Family, The Alacan Family, The Altilio Family, Harbor Fitness, GPM Pediatrics, PC , D’Onofrio General Contractors Corp, Elisa DiGregorio, The Nickley Family, The Agostino De Laurentis Family, Mike Donut Shop , Morky and Mindy, Bay Ridge Honda and The Sabbagh Family, The Elfont Family, Complete Cadiovascular Care Spyros Kokolis MD, The Fortunato and Filipazzo Family, Bohemian Hair Salon, Romantique Double Diamond, Cebu Bar and Restaurant, Pittsburgh Jet, CKO Bayridge and Sheepshead bay , Dr. Michael G Vitale MD, MPH, Spadaro International Services, The Nicastro Family, The Tadduni Family, The Aiello Family, acpjets.com, Menny Memories Entertainment, D.Coluccio & Sons Inc., Finishing Touch Landscape & Design, ino Iron Works, Sarta Realty LLc, Law offices of Sarta & Scarpati, LLP, Bad Ass Academy, SocialMink.com and Priority Payments Local
Thank you for the desserts that were donated by Little Cup Cake Bakeshop and Maria’s Gourmet Italian Ices!
Thank you for the food donated by Paneantico of Bay Ridge Brooklyn, Royal Crown of Staten Island, Peter Pizza, Krispy Pizza, and Peppino’s Brick Oven Pizza!
Thank you to Michelle of Bobby’s World PC for providing the entertainment that all kids were able to partake and that kept the kids crafting and snacking on Popcorn and Cotton Candy.
Thank you to Augie of Metro City Entertainment for provided the music that kept every kid moving and grooving.
Thank you to EMPIE ALL STARS CHEERLEADERS for starting us off with Cheer and keeping our guests entertained.
Thank You to Daniel Marino from Marino Photography for snapping all the pictures and Stas Furman from FACTOR 5 FILMS for videoing the events of the day.
Thank you to the Class act, park owner Toby for hosting the event for us and acknowledged the enjoyment of the afternoon and compassionately kept the event going for an extra hour AGAIN for the third year in a row, free of charge. The staff was so supportive and excited to be a part of Pietrosfight.org. THANK YOU VERY MUCH!