Created Date: June 06, 2014
Author: pietrosfight
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BUMP, CRASH, and SMASH DMD!
Pietrosfight.org hosted our second annual children’s event, “Bump, Crash and Smash DMD”, on Friday June 6th at Adventurer’s Family Entertainment Center, the old “Nelly Bly”. The turnout was a huge success with over 425 kids and parents coming out to support Pietrosfight.org. Every parent being there leading by example, teaching our children to support one another and our community. Because of all of our fighters and supporters who have been battling with us from day one, this disease is well on its way from being a fatal disease with no hope to a chronic disease that can be slowed down while a cure is found. Senator Marty Golden and Congressman Michael Grimm joined us that evening to hold a press conference and speak on the progress of the drug Sarepta that this community has helped fund. Pietrosfight.org has been waiting for answers from the FDA for almost two years now on approval for a drug called Eteplirsen that would help boys with DMD. The FDA has finally heard our voices and Sarepta announced that the FDA will accept a New Drug Application and will still consider Accelerated Approval for Eteplirsen . They will also allow the company to open a new trial for younger boys which Pietro will be eligible for. We would like to thank Senator Marty Golden and Congressman Michael Grimm for their endless support.
Thank you to the Brooklyn vendors Paneantico, Royal Crown, Peter Pizza, Aunt Butchies, & Villa Bate supplied the food and treats for the evening. Kids were able to partake in the entertainment provided by Michelle of Bobby’s World PC provided the entertainment that kept every kid dancing and crafting, Congressman Grimm generously donated the services of Mickey and Minnie for the kids enjoyment. Thank you to all the Sponsors, Finishing Touch Lanscaping, D Coluccio & Sons, Investors bank, Sarta & Scarpati, Gino Iron Works Corp, Sarta Realty, Menny Memories – Rocco Coluccio Jr., SocialMink.com, Bad Ass Fitness Inc, Rosen Seymour Shapss Martin & Company LLP, Dr. Teddy Neamonitis, Law Offices of Aidala & Bertuna, P.C., Bay Ridge Honda – Sabbagh Family, Lewis Salgado Consultants LLC, NYU School of Medicine, The Lopinto Family, Roth & Company LLP, Dr. Joseph Lattinelli & Lauren, Joe and Adrienne Temperino, The Alacan Family, D’Onofrio General Contractors Corp, Roys Sheepshead Bay, Lewis Salgado Consultants LLC, Heart to Heart, Inc, Hands of Gold Chiropractic, The Picciano Family, Mr. Agostino De Laurentis, One on One Physical Therapy, Flower Hill Auto Boby, Inc, The Pizzimenti Family, The Altilio Family, Wolf Prop., S & B Electric Suppy Corportaion, Mr. Steve Bibas, Harbor Fitness, Romantique Double Diamond, Stepping Stones Nursery School, Cebu, Giacomos Wood Fired Pizza, Mov Welding Mr. Ray Felton, and The Jaigobind Family. Special Thank you to Horizons in Dance who features nationally award winning dancers and choreographers and Star Struck Boys from Americas Got Talent for performing and got everyone up dancing.
An overwhelming $35,000 was raised. Thank you to Nicole starting the night singing the National Anthem. Thank You to Daniel Marino from Marino Photography for snapping all the pictures if you would like to purchase pictures visit http://bit.ly/pietrobcs and Factor5 Films for capturing the evening’s festivities. Class act, park owner Toby acknowledged the enjoyment of the afternoon and compassionately kept the event going for an extra hour, free of charge. The staff was so supportive and excited to be apart of Pietrosfight.org.
Thank you to the Brooklyn vendors Paneantico, Royal Crown, Peter Pizza, Aunt Butchies, & Villa Bate supplied the food and treats for the evening. Kids were able to partake in the entertainment provided by Michelle of Bobby’s World PC provided the entertainment that kept every kid dancing and crafting, Congressman Grimm generously donated the services of Mickey and Minnie for the kids enjoyment. Thank you to all the Sponsors, Finishing Touch Lanscaping, D Coluccio & Sons, Investors bank, Sarta & Scarpati, Gino Iron Works Corp, Sarta Realty, Menny Memories – Rocco Coluccio Jr., SocialMink.com, Bad Ass Fitness Inc, Rosen Seymour Shapss Martin & Company LLP, Dr. Teddy Neamonitis, Law Offices of Aidala & Bertuna, P.C., Bay Ridge Honda – Sabbagh Family, Lewis Salgado Consultants LLC, NYU School of Medicine, The Lopinto Family, Roth & Company LLP, Dr. Joseph Lattinelli & Lauren, Joe and Adrienne Temperino, The Alacan Family, D’Onofrio General Contractors Corp, Roys Sheepshead Bay, Lewis Salgado Consultants LLC, Heart to Heart, Inc, Hands of Gold Chiropractic, The Picciano Family, Mr. Agostino De Laurentis, One on One Physical Therapy, Flower Hill Auto Boby, Inc, The Pizzimenti Family, The Altilio Family, Wolf Prop., S & B Electric Suppy Corportaion, Mr. Steve Bibas, Harbor Fitness, Romantique Double Diamond, Stepping Stones Nursery School, Cebu, Giacomos Wood Fired Pizza, Mov Welding Mr. Ray Felton, and The Jaigobind Family. Special Thank you to Horizons in Dance who features nationally award winning dancers and choreographers and Star Struck Boys from Americas Got Talent for performing and got everyone up dancing.
An overwhelming $35,000 was raised. Thank you to Nicole starting the night singing the National Anthem. Thank You to Daniel Marino from Marino Photography for snapping all the pictures if you would like to purchase pictures visit http://bit.ly/pietrobcs and Factor5 Films for capturing the evening’s festivities. Class act, park owner Toby acknowledged the enjoyment of the afternoon and compassionately kept the event going for an extra hour, free of charge. The staff was so supportive and excited to be apart of Pietrosfight.org.